DNA has partnered with the following organizations to promote our common goals and interests.
Association of Dermatology Administrators & Managers (ADAM)
The Association of Dermatology Administrators & Managers (ADAM) is an organization of managers, administrators, attorneys, accountants and physicians in private, group and academic practice. Members are provided strong business guidance and support through links to information and leaders who have expertise in dermatology practice issues. ADAM’s network includes specialists in the fields of continuing education, managed care and financial issues, credit and collection, jurisprudence and ethics, and coding. ADAM advocates responsible and progressive business practices in a quality healthcare environment by providing education, professional recognition, growth and networking avenues to members.
British Dermatological Nursing Group (BDNG)
The British Dermatological Nursing Group (BDNG) was established in 1989 to offer an independent specialty group of nurses and healthcare professionals with an interest in dermatology. The group was established within the associated members group of the British Association of Dermatologists (BAD) and benefits from sharing headquarters and administrative support with the BAD.
Children’s Melanoma Prevention Foundation (CMPF)
Children’s Melanoma Prevention Foundation (CMPF) and DNA have worked together to educate nurses and patients about sun protection and skin cancer prevention. DNA endorsed CMPF’s SunAWARE acronym over a decade ago, and more recently the K-12 school curriculum. The collaboration includes a recent electronic publication, What are These Spots on my Skin? as well as multiple SunAWARE and Don’t Fry Day patient resources.
The Cicatricial Alopecia Research Foundation (C.A.R.F.)
The Cicatricial Alopecia Research Foundation (C.A.R.F.) was formed as a result of one person’s experience with scarring alopecia. When the patient realized that little is known about such disorders, she decided, with the help of her doctor, to initiate a grass roots effort to raise funds to study these problems.
Coalition of Skin Diseases
The Coalition of Skin Diseases (CSD) consists of 21 individual organizations that represent patients suffering from some of the 3,000 known types of skin disease. The groups share a common mission of educating patients, advocacy and supporting skin disease research that will lead to new treatments and cures. CSD members have engaged in collaborative advocacy efforts, including Skin Disease Research Day and NIAMS Coalition Day.
Infusion Nurses Society
The Infusion Nurses Society, located in Norwood, MA, is a national nonprofit organization founded in 1973. Membership is open to all healthcare professionals from all practice settings who are involved in or interested in the specialty practice of infusion therapy. INS is dedicated to advancing the delivery of quality therapy to patients, enhancing the specialty through stringent standards of practice and professional ethics, and promoting research and education in the infusion nursing practice.
International Psoriasis Council
Founded in 2004, the International Psoriasis Council (IPC) is a global non-profit organization dedicated to advancing psoriasis research and treatment by providing a forum for education, collaboration, and innovation among physicians, researchers, and other professionals working on the physical, economic, and social aspects of psoriatic skin and joint disease.
The National Alopecia Areata Foundation (NAAF)
The DNA and the National Alopecia Areata Foundation have partnered to promote the Alopecia Areata Registry. With the DNA’s mission highlighting the importance to develop and promote education and nursing leadership in dermatologic care, and NAAF’s mission to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease and to educate the public about alopecia areata, a common connection would be working with the patients, in a clinical setting, in an effort to minimize the hardship associated with alopecia areata.
What is the Alopecia Areata Registry?
The registry will provide materials to facilitate research and investigation in all areas associated with alopecia areata. Detailed data on the natural history of alopecia areata, and on the epidemiology of disease will be very useful to understand who gets this disease, how it progresses, and other diseases with which it is associated. DNA from patients collected in the second tier of the registry will greatly facilitate genetic studies, allowing power far beyond that achieved by any one investigator at one site. Careful collection of detailed clinical information will facilitate genetic studies of disease subsets, leading to new genetic insights. New investigators may do immunologic and other studies who don’t have access to their own group of carefully defined alopecia areata patients.
How do I Register Patients?
Registering patients is easy to do. Simply go to www.alopeciaareataregistry.org, click on the Enroll Here link on the sidebar, and click on Short Form Questionnaire. The Short Form is the First Tier (T1) of this Registry. Both affected and unaffected family members should be urged to complete the Short Form, and you will receive credit for each individual you register. To assure that you receive credit for your registration, make sure the patient/family member puts DNA FIRST on the line where it asks for the dermatologist’s name, followed by Your Name & Medical Degrees. You can have the patient complete the form online. If they don’t have computer access you can print out copies from the Web site and have the patient mail the short form to the PI site in Houston. Complete your name and DNA on the dermatologist line before giving the hard copy to the patient.
National Psoriasis Foundation
The National Psoriasis Foundation is a nonprofit organization dedicated to educating, serving and empowering people with psoriasis and psoriatic arthritis.
National Student Nurses Association
Founded in 1952, the National Student Nurses’ Association (NSNA) is a nonprofit organization for students enrolled in associate, baccalaureate, diploma, and generic graduate nursing programs. It mentors the professional development of future registered nurses and facilitates their entrance into the profession by providing educational resources, leadership opportunities, and career guidance. The organization has over 53,000 members in 50 states, the District of Columbia, Guam, Puerto Rico and the U.S. Virgin Islands.
The SunWise Program is an environmental and health education program of the Environmental Protection Agency that aims to teach the public how to protect themselves from overexposure to the sun through the use of classroom-, school-, and community-based components. The DNA has partnered with the SunWise Program to promote SunWise behavior.
The Women’s Dermatologic Society
The Women’s Dermatologic Society and DNA have a shared vision to reduce skin cancer in America by promoting sun safety. A dedicated group of volunteers from the DNA and the Women’s Dermatologic Society have brought the national education campaign, “Families Play Safe in the Sun” to thousands of families across the US. Volunteers provide free resource materials, sunscreen, Dermascan assessments, UV reflectance photographs and an array of children’s sun safety activities to emphasize the importance of good skin health and sun protection. Further collaborations have been discussed for the future.