Here is a great article from the AAD by Jan Bowers, contributing writer, January 01, 2013
In an era of dwindling resources, advocacy groups for patients with dermatologic diseases are reaching beyond their traditional mission of providing support and information to patients and families. Now, in partnership with dermatologists, they’re stepping up their efforts to fund research, influence legislation, advocate for insurance coverage, and participate in the development of treatment guidelines. Some groups are also increasing their outreach to dermatologists in an effort to bridge the gap between the treatment and information the physician can provide in an office visit and the needs of the patient in the day-to-day management of the disorder.
“Dermatologists should understand that the patient advocacy groups can enhance patient outcome for them because we have resources and information for patients that they can’t relate in the short span of time that they have with the patient,” said Vicki Kalabokes, president and CEO of the National Alopecia Areata Foundation (NAAF). “If doctors are wondering, Why should I even care about these groups?,’ we say it’s because they will help you with your patient in ways that you can’t, and the patient will be more satisfied.” Read the rest at the AAD's Dermatology World archives.